Parent & Family Support Network

Partners
211 Helpline
Comprehensive information and referral is available by dialing 2-1-1 or 1-800-346-2211. 2-1-1 Helpline is a program of the Institute for Human Services supported in part by the Allegany County United Way.
www.helplineonline.net

ACCORD
ACCORD Corporation was established in 1972 and strives for excellence in alleviating poverty and fostering economic development and growth.
http://www.accordcorp.org/

Allegany County School Districts
http://136.183.4.135/cdc/WNYschoolDist/displaywnyschooldistrict.asp

Allegany Department of Health
The mission of the Allegany County Department of Health is to educate, motivate and empower Allegany County residents to adopt and maintain healthy lifestyles.
www.alleganyco.com/default.asp?show=btn_health

Allegany Department of Social Services
The Allegany County Departments of Social Services (DSS) provides or administers a full range of publicly funded social services and cash assistance programs. Families whose income meets state guidelines and who meet other criteria, may be able to receive a subsidy to offset some of their child care costs.
http://www.ocfs.state.ny.us/main/localdss.asp

Allegany Rehabilitation Associates, Inc. (ARA)
The ARA helps individuals in Allegany County affected by mental illness and serious emotional disturbance to achieve their hopes, dreams and quality of life goals. Services are delivered in the least restrictive, non-stigmatizing, most accessible environment within a coordinated system of community and self-care, respectful of a person's family and loved ones, language, culture, ethnicity, gender and sexual identity.
www.araservices.com/tcc.html

Arc of the United States
Formerly the Association for Retarded Citizens of the United States. The largest national organization serving people with mental retardation.
http://www.thearc.org

AWSRHN (Allegany/Western Steuben Rural Health Network, Inc.)
In accordance with the National Rural Health Association's Quality Initiative, the Allegany / Western Steuben Rural Health Network, Inc. seeks to promote access to coordinated, high-quality care in our rural community.
www.myruralhealthnetwork.org  

Cattaraugus County School Districts
http://136.183.4.135/cdc/WNYschoolDist/displaywnyschooldistrict.asp

Cerebral Palsy Association of New York State
This website offers links, information, news and resources regarding cerebral palsy.
www.cpofnys.org

DDinfolink
Locating services for people with disabilities in Western New York. Searchable by county, agency, disability, etc.
www.ddinfolink.org

Developmental Disabilities Alliance of Western New York (DDAWNY)
News and updates on developmental disabilities from western New York perspective.
www.ddawny.org

Finger Lakes Parent Network. Inc.
Finger Lakes Parent Network, Incorporated is a parent-governed organization, focused on the needs of children and youth with emotional, behavioral, developmental, and/or mental disorders and their families. Their mission is to support and empower families so that they can improve the quality of their lives and help their child to achieve his/her full potential within the community.
http://www.flpn.org/

Medicaid Transportation
Medicaid recipients often do not have access to a car to get to and from medical appointments.  In these situations we can help you obtain medical services by arranging for transportation.
http://www.alleganyco.com/default.asp?show=btn_dss/admin_serv/medical

National Association for the Dually Diagnosed (NADD)
An association for persons with developmental disabilities and mental health needs.
www.theadd.org

National Down Syndrome Congress
Provides links, information, news and resources regarding cerebral palsy; located in Atlanta, GA. Contact them toll-free at (800) 232-6372.
www.ndsccenter.org

National Down Syndrome Society
This website provides links, information, news and resources regarding cerebral palsy. Located in New York City, you may contact them toll-free at (800) 221-4602.
www.ndss.org

National Multiple Sclerosis Society
The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. The Society and its network of chapters nationwide promotes research, educates, advocates on critical issues, and organizes a wide range of programs - including support for the newly diagnosed and those living with MS.
www.nationalmssociety.org

New York Autism Network
This website provides access to information, services, news and a number of useful links to sites focusing on autism.
www.albany.edu/psy/autism/autism.html

NYSARC (formerly the NYS Association for Retarded Children)
A family-based organization working with and for people who have intellectual and other developmental disabilities.
www.nysarc.org

NYS Developmental Disabilities Planning Council (DDPC)
The DDPC is responsible for developing new ways to improve the delivery of services and supports to New Yorkers with developmental disabilities and their families.
www.ddpc.state.ny.us

NYS Industries for the Disabled (NYSID)
Turning business opportunities into jobs for New Yorkers with disabilities.
www.nysid.org

NYS Rehabilitation Association (NYSRA)
Statewide organization provides employment and on-going support services to people from all disability groups.
www.nyrehab.org

Office of Mental Retardation and Developmental Disabilities (OMRDD)
OMRDD provides state-oriented supports and services for people with developmental disabilities and their families. 
www.omr.state.ny.us

Office of Mental Health (OMH)
OMH provides state-oriented supports and services for people with developmental disabilities and their families. 
www.omh.state.ny.us

Parent Network of Western New York
The mission of this organization is parents helping parents and professionals enable individuals with disabilities to reach their own potential. There are also numerous internet links to resources in Western New York.
www.parentnetworkwny.org

Social Security Administration (SSA)
The SSA has served the American people, providing the major source of income for most of New York State seniors. Social Security pays benefits to disabled workers and their dependents as well as the families of deceased workers. They administer the Supplemental Security Income program, a program based on need for people age 65 or older and people with disabilities, regardless of age. They also help Medicare beneficiaries with limited income and resources apply for extra help with the cost of their prescription drugs under the new Medicare Prescription Drug Program.
http://www.ssa.gov/ny/

Vocational and Educational Services for Individuals with Disabilities (VESID)
VESID promotes educational equity and excellence for students with disabilities while ensuring that they receive the rights and protection to which they are entitled; assure appropriate continuity between the child and adult services systems; and provide the highest quality vocational rehabilitation and independent living services to all eligible persons as quickly as those services are required to enable them to work and live independent, self-directed lives.
www.vesid.nysed.gov/about.htm


Resources
A Parent's Guide
A must-have guide to Special Education in New York State for Children Ages 3–21.
http://www.vesid.nysed.gov/specialed/publications/policy/parentguide.htm

Advocacy Center
The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and educational workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills.
http://www.advocacycenter.com/

AutismWeb.com
AutismAutismWeb.com is an online community of parents interested in autism, Pervasive Developmental Disorder (PDD) and Asperger's Syndrome.
http://www.autismweb.com/

Autism Society of America Western New York Chapter
The Autism Society of America Western New York Chapter includes professionals and parents of children with Autism, PDD, and Asperger Syndrome. The Chapter holds informational meetings and workshops and publishes a newsletter.
http://www.autismwny.org/home.aspx

Autism Speaks
Autism Speaks is the nation's largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
http://www.autismspeaks.org/index.php

CASE - Council for Exceptional Children
CASE is an international professional educational organization which is affiliated with the Council for Exceptional Children whose members are dedicated to the enhancement of the worth, dignity, potential, and uniqueness of each individual in society. The Mission of the Council of Administrators of Special Education, Inc. is to provide leadership and support to members by shaping policies and practices which impact the quality of education.
http://www.casecec.org/

Centers for Disease Control and Prevention
Your online source for credible health information.
http://www.cdc.gov/

Cerebral Palsy Question & Answer
Cerebral palsy is a group of disorders that affect a person's ability to move and keep their balance and posture as a result of an injury to parts of the brain, or as a result of a problem with development. Cerebral means having to do with the brain. Palsy means weakness or problems with using the muscles. Often the problem happens before birth or soon after being born. Cerebral palsy causes different types of disabilities in each child. http://www.cdc.gov/Features/CerebralPalsy/

Epilepsy
So what is epilepsy? What is a seizure? Will I have seizures forever? You may have a lot of questions about epilepsy. Epilepsy.com will help you understand the basics, answer the most common questions, and empower you with the information you need to find a place for epilepsy in your life without turning it upside down.
www.epilepsy.com/epilepsy/main_epilepsy

Golisano Children's Hospital
The Golisano Children's Hospital is a 124-bed children's hospital that serves as the referral center for upstate New York, surrounding states and Canada. They combine award-winning research, internationally acclaimed education and compassionate care to serve children and families.
http://www.urmc.rochester.edu/childrens-hospital/

Kaleida Health
Kaleida Health is the largest health care provider in Western New York. We serve the area's eight counties with state-of-the-art technology and comprehensive healthcare services by expert, compassionate healthcare professionals to bring our patients the best care.
http://www.kaleidahealth.org/

Muscular Dystrophy Association (MDA)
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
www.mda.org/

NYACTS – An Initiative for Adults and Children on the Autism Spectrum
NYACTS is a website designed to provide current information on New York State services and supports for individuals with autism. It is estimated that more than 60,000 New York State residents have a diagnosis of autism or autism spectrum disorders (ASDs) and that the incidence of autism could reach 4 million Americans in the next decade.
http://www.nyacts.org/

Parent to Parent of Western New York
Parent to PArent of WNY is a place where families of individuals with special needs, and the professionals who support them, can meet and share information. Our goal is to provide you with connections, tools and resources to support you in your role.
http://www.parenttoparentnys.org/Regional/western.htm

Tramatic Brain Injury (TBI)
TraumaticBrainInjury is a project of TraumaticBrainInjury.com, LLC. Our mission is to be the leading internet resource for education, advocacy, research and suport for brain injury surviviors, their families, and medical and rehabilitation professionals.
www.traumaticbraininjury.com

Tuberous Sclerosis
Tuberous sclerosis-also called tuberous sclerosis complex is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. It commonly affects the central nervous system and results in a combination of symptoms including seizures, developmental delay, behavioral problems, skin abnormalities, and kidney disease.
http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm

Upstate New York Families for Effective Autism Treatment (UNYFEAT)
UNYFEAT is an autism advocacy organization serving Rochester and the surrounding areas. Founded in 2004, by a small group of parents of children with Autism Spectrum Disorder (ASD), their mission is to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life.
http://www.unyfeat.org/index.php

Wrightslaw
Wrightslaw is an online resource where parents, educators, advocates, and attorneys go for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
http://www.wrightslaw.com/